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After an 8 year battle with infertility and countless struggles, our family is finally complete. This blog chronicles the journey it took for us to start and build the family we always wanted. Background on the blog (started in 2012, just days before I found out the embryo transfer for our son worked).... I decided to start a blog after realizing I have only been able to make it through my TWW's (two week waits) with the help of Google and with the openness of other women suffering from infertility sharing their own stories and giving others hope. I have time and time again found my exact symptoms on other women's blogs and felt an overwhelming sense of calmness they provided me. I thought it was time to pay it forward and hopefully provide this same thing to other women on their own journeys.

Thursday, March 24, 2016

7w2d - Lovenox Doc

I am DESPERATELY seeking a doctor to help me with lovenox.  My OB was pretty shocked I was even on it.   I am on it because I have the MTHFR heterozygous c677t mutation and after my loss last fall of a normal girl,  I am grasping at straws as to what caused that and how to prevent it from happening to the twins.   The MTHFR mutation has been linked with early pregnancy loss because of clotting.  My RE gave me a script for it to last through my first trimester.  I would like to be on it until week 35 and then switch to heparin (a less form).   Anyways, I asked my OB's office for a referral to a local hematologist and a referral to an MFM that travels to Erie to see high risk patients.  I hope they give me both.  In the meantime I also contacted Cleveland Clinic to see an MFM there.  Erie is a little behind on stuff and Cleveland may give me better care.

I also had a tiny bit of brown spotting again today.

My next sono isn't for 5 whole weeks!  I'll be 12 weeks already by the time it happens.  I asked my OB if we could do another one before then (because of my loss at 9.5 weeks) and she said not officially but she did say she'd be okay with me calling in and saying I'm "cramping" or "spotting" (this one would actually be true) and I could get one.  She asked I didn't do it more than once a week.  I won't.  But now I'm debating when I should do one.  I definitely can't wait until 12 weeks.  My m/c happened at 9w4d last fall.  I'm 7w2d today.   I'm thinking AT LEAST one at 10w.  But can I even wait that long to see the twins again???


28 comments:

  1. Maybe you could aim for one at 9.5 weeks, and if you are feeling okay at 9.5 weeks, aim for 10 weeks :) I would also want to have regular ultrasounds so I think it's understandable! Plus, I don't think it's any expense at all for the OB/GYN so it shouldn't be bothersome for them, really.

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    1. I think you're right. Going to try and hold out 2-3 weeks til this milestone. I'm sure I'll cave and do like 8.5, 10, and then the 12 week one.

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  2. I think there's nothing wrong with that! They are usually more understanding in certain situations, especially like IVF which can be a very costly and emotional process.

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  3. I see an MFM, for a slew of reasons. But I get an ultrasound every 2 weeks. In the beginning when I was spotting/bleeding they let me come in 'whenever' I wanted. I wonder if you could find a way to only be under the care of an MFM. I feel like with your history that shouldn't be that hard.

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    1. Erie doesn't really have a dedicated MFM, not that I can find. I didn't think we were THAT small of a city. The MFM I even asked to be referred too just drives to Erie every once in a while. Wonder where he even see patients? Since this post, I also heard he is pretty useless... example: telling someone with MTHFR to just "take extra folic acid". OMG this is NOT what an MTHFR person should do. So yeah.... anyways, I called Cleveland Clinic to get an MFM - even though they are 1.5 hours away. It will be worth it to see these babies to term!!!!

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  4. I'm not sure how to leave you a message.

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  5. This scares me! I have TWO forms of MTHFR, c677t and A1298C. My RE spoke with two other high risk dr's about this and they too said that they found that mthfr and these specific mutations don't cause a problem. I will admit I am nervous about it, especially since you are taking lovenox for yours!

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    1. I take Methylfolate and B12 along with a bunch other supplements. Have you been on this site? Great information...http://mthfr.net/recurrent-pregnancy-loss-frequent-miscarriage/2011/09/25/

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    2. I didn't take lovenox for Victor. Just baby aspirin until 38 weeks or so. Heck, I don't even know if I need lovenox really. I am literally just trying every last ditch effort to save these babies! That's an interesting article about testing the dad as well. Never occurred to me that was a thing!

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  6. I have one copy of the MTHFR gene mutation and so I take 14mg of Deplin every day. It's a food vitamin of folate but because it's such a high amount of folate, it's by prescription only. I met with an endocrinologist at Cleveland Clinic to have the test done and figure out a protocol. She was excellent. Dr Hatipoglu. She might be worth meeting with. Just thought I would share. Most people/doctors have no clue what I am talking about with MTHFR. But having even one copy of the gene mutation can affect the hormones that cause depression. Hence why I searched it out.

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    1. That's awesome you found someone who gets it!!!!! I do take extra methylated folate daily. So I'm at least covered there. :)

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  7. I found your blog after typing in 16dp5dt cramping into google, cuz that's where I was at yesterday. I continued reading, teared up when I came to your last miscarriage. Sooooo similar to my 2nd cycle. I'm currently in the 2 ww, transferred 2 frozen embies on March 8th, beta of 359 on 10dpt, and final 20dpt beta on the 28th. This is our 5th and final cycle. It's a roller coaster and ur was really nice running across your blog. Congrats on your twins!!
    Cheers,
    Nicole

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    1. Nicole, get ready for twins! 359 on 15dpo sounds like twins to me!!!!! You'll have to let me know!!

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    2. Oh super yikes! I have my DD from my 3rd cycle who'll be 2 on April 3rd. They only gave me 5% chance of twins and 50% for baby!!! Transferred 2 BB blasts! Believe me I researched that number to death, you know because that's what you do! My nurse said it was a nice strong number!

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    3. You'll have to let me know how beta #2 today goes!!!

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    4. Just waiting for the call!! Longest day EVER!!!

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    5. Thank you so much! Next step ultrasound on the 8th!

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    6. Definitely looks like twins. Too bad I can't add an attachment to a reply, but your line is pretty above average!!
      http://www.babymed.com/tools/hcg-calculator

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    7. I'm pretty much scared to death!!! My daughter was a twin initially too. You just never know I guess!!! How are you doing/feeling by the way??? I'm starting to feel nauseous! 👎

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    8. I feel 100% normal. Scaring me to death!!!!

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  8. What is the equivalent dpo to 10dp5dt?

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    1. 10dp5dt = 15dpo
      240 hours between both betas.

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  9. I've got the MTHFR heterozygous c677t mutation as well. Had a healthy baby girl the natural way in 2012, then 5 miscarriages, one failed round of IVF, and now 4 weeks pregnant again naturally. My OB said that my particular mutation only causes a lack of being able to absorb and process folic acid, so has me on a folic acid supplement. Do you know why they think it also causes clotting? I haven't read that anywhere. Wondering if I should be taking baby aspirin as a precaution.

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    1. First, congratulations! Second, especially with your past miscarriages, I would absolutely push for lovenox or baby aspiring. Most OBs are CLUELESS when it comes to MTHFR.

      This is a good article.
      https://www.verywell.com/mthfr-and-recurrent-miscarriages-whats-the-story-2371789
      "Common mutations in the MTHFR gene can affect how a person's body processes homocysteine, an amino acid found in the blood. People with MTHFR gene mutations may have elevated levels of homocysteine, although not everyone with an MTHFR gene mutation is affected. "

      Why not err on the side of caution? My high risk doctor put it to me like this: "If 100 women had MTHFR, maybe only 1 of them would have recurrent miscarriages because of it. So should we treat all 100 women just to help that 1 woman?" The obstetric line of thought is NO. But if you are that 1 woman, wouldn't you desperately say YES?

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    2. thanks - my MD said the baby aspirin can't hurt!

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